Wednesday, 29 September 2010

been a while...

but I've not had anything interesting to say.

I still don't, so don't expect anything amazing. Went up to the ward today cause I've been having the most terrible pains in the centre of my chest, radiating round into the back of my ribs and shoulders. My appetite has been more or less completely gone, I've been shattered but unable to get much in the way of sleep and my headaches have been shocking. I had to ask to get away from work early on Monday and spent all of Tuesday doing nothing. As usual, my chest didn't want to give up anything significant and I doubt much (if anything) will grow in it, which is frustrating the life out of me after what I managed to get up last week when I didn't have a bloody sample pot. I really do think the Drs must think I make shit up, but I don't, I genuinely feel crap.

Anyway, my weight's down 4kg and gastritis was the best we could really come up with, although it wasn't exactly a quick diagnosis...not like him really! I've been taken off cipro as it was about 4th on the list of side effects and have doubled up on omperazole to see if it helps. I managed to eat most of my dinner, but the pain afterwards was pretty intense again. I'm also on my 3rd week of fluconazole since starting colomycin/cipro, and have a week to go, which is driving me mad.

I just feel so frustrated tonight...really annoyed and irritable and just wanna be left alone. I know we all have bad days and everyone is entitled to them, I just can't be bothered with feeling like this. point even getting started, I could go on for hours.

Tuesday, 7 September 2010


Just a quick update!

I went to see the diabetes nurse, Christine, who is great. She wants me to monitor my sugars post meal 2 days a week (1 week day and 1 weekend day) for now and see how it goes. They were good for the couple of weeks before I went to see her but they are creeping back up so we'll see! Need to watch what I'm eating if I'm to stay away from insulin...I don't want it, but if it comes to it I know it's for the best. At least at the moment I can afford to watch what I eat, as my BMI is just over 24 so no need to worry there!

On Sunday I did my 10k. It was a great day for it, cloudy and breezy, and the atmosphere was unreal. There were lots of runners for the CF Trust, and I met Paul which was nice, although June Ross was keen to keep us apart lol. I was a shakey, breathless mess by the end and apparently lost my beetroot colour sharpish, turning a lovely shade of pale instead. I didn't realise at first that I was hungry and how much I was shaking until my mum told me and made me eat. Anyway, I think my uncle and I have raised almost £1000 between us which is great, and we are still collecting donations. The Stewarton and District Round Table have asked me to write an official letter asking for sponsorship so who knows what might come from that, and Alistair's work gave us £250 :)

I forgot, until I got a message last week, that I'd agreed to be musical director for a local pantomime again this year...that came as a bit of a shock as the auditions were on Sunday, so after all that running I had to go and listen to people try and sing. They weren't all terrible, but there were certainly very few people you could call's going to be interesting. I have no idea how many people I have in the chorus, and there are 14 principles, at least 10 of which have to sing! The performances are at the end of November, but I am unavailable for a lot of the rehearsals, which is going to make my job much harder. Tonight is the production meeting so fingers crossed it goes well.

I'm still applying for jobs...I've seen 1 in particular that I'd love to get, but I'm not going to talk about it incase nothing comes from it...that way I'll be less disappointed if I don't get it.

Hope everyone is keeping as well as possible :)