Thought I'd write this post while I remember (almost) everything that was talked about!
Ok, so lung function went really well. Although my numbers have dropped, my predicted numbers have also dropped so I've basically stayed the same. I didn't manage to get a sample (goodness only knows why, chest isn't exactly clear, just stubborn) so had a cough swab instead. Physio went pretty well too, didn't manage to walk as far as last year but there's not a huge change. I got a weird headache half way through which shot my heart rate up and put my sats down a tad, but it resolved and everything went back to normal. I definitely felt more breathless than last year as well. Dietician said the usual really - need to stop losing weight, try and get tummy back under control and do a food diary.
Dr is referring me to ENT again as they said I didn't attend my last appointment, but I didn't get one through :( She's also referring me to rheumatology to see if I need anything stronger for my joints. They're not always bad but they've flaired up just now so she started me on naproxen twice a day as well. I'm getting much better at giving blood! So proud lol. Managed first time and I didn't have a freak out :)
I'm told I need to get better at doing physio. I'm doing enough exercise apparently but just not enough physio. I get a complete mental block with physio, hate it, can't seem to always make myself do it, even when I know I need it. Think I need to do some psychological work with myself lol.
Nothing else really to talk about, life is just rolling on as normal...dunno if that's good or not lol.
Anyway, I'm tired now and have a piano lesson to do for a new student, so I'm gonna shoot!
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Naproxen is pretty good for joints :D The other one is celebrex- it's purpose is specifically for arthritis so it might be worth asking about that one.
ReplyDeletePhysio is so difficult to make yourself do. I got told I needed to do more when I was at clinic and I do 4 lots a day when I'm well. I don't think the physio's really realise the full extent that physio impacts on your life. It's very frustrating!!!
Your hospital is nice if you do the 6 minute walk. My hosp always makes us does the shuttle. I think they just want to finish us off tbh!
xxx