Saturday, 27 March 2010


Well...really just feeling disheartened.

CF can be so unforgiving. Eva passed away, and as much as I didn't know her (I only started reading her blog recently), I really feel that she was, and is, a huge inspiration to so many people. It has to be too soon for her. But that's the way of the world and some people are taken from us too early. I cried when I found out. That's 2 people in a week...

This is why I stayed away from the CF bubble for so's hard. It is amazing to be able to talk to people who understand what you're going through, and their advice is so greatly appreciated, but it's hard when people pass.

"Healthy people are right namby-pambys compared to us lot." A quote from the forum. She's got a point, it does take strength, even for someone considered relatively healthy with CF, to cope with all the things it throws at us.

1 comment:

  1. I'm the same as you honey I stayed away from the CF community for years and only came back in when I needed advice about transplant but possitives far outweigh the gain!!

    Read back over Eva's blog before she got rejection, it'll make you feel better about things!! She had an amazing two years with her good lungs. Not long enough but still better than nothing!! xx