Life at this time of year is boring.
Seem to spend it trying not to spend money, not that we have any, but all we do is sit in. As well as trying not to spend money, I'm trying to earn money. I haven't had a single sick day this month, woo! I've felt like crap this week but I can't phone in sick when I only have 3 shifts a week and again they're talking about cutting bank staff hours. Instead of having us in for full shifts, we'll be brought in for 4/5 hours at a time, losing most of our unsocial premium and a lot of pay in the process. To make up for that, they say I can do more days...even though I have chosen to do less days so that I can try and keep on top of everything at home as well as work, and allow sufficient rest time in between. Obviously I don't have any significant lung disease and manage pretty well as far as that's concerned, but my digestion/sinus/joint issues are also exhausting and I'm constantly worn down by pain and feeling sick. I had gastritis a couple of weeks ago which was seriously painful. I still have pain coming back every now and then but fortunately it's not constant any more and my appetite is better, but not fantastic.
I had another appointment last week at the diabetes centre. Christine, the nurse, seemed quite pleased with me. Sporadic highs but some good control too so no insulin for me yet :) I'm assuming my HbA1c result was good as she was meant to phone me but hasn't. No more appointments made either, so that's me unless things go tits up, but I think she wants me to go to the joint clinic every now and then.
I've been finding my chest to be quite unpredictable too at the moment. I seem to have a few days at a time where physio is seriously uneffective and I feel dry and don't cough...then all of a sudden I'll be coughing stuff up for days and coughing til I'm nearly sick, and sometimes I am sick...but as quick as it comes it goes again. I know there must still be stuff in there, otherwise it wouldn't be happening, but I just can't figure it out. Anyone have any ideas there? lol. One of the young men I support at work was all worried on Friday cause I couldn't stop coughing. Bless, he was telling me to get a nice warm bath when I got home and get some rest so I'd feel better, and on Monday he kept asking if I was feeling better. Now, doesn't sound significant, but if you knew this person you'd understand that, although he is caring at heart, he struggles a lot with social situations and usually prefers to make himself heard by shouting abuse and talking about bodily functions etc, so it really was unexpected and I felt terrible for causing him concern.
All that aside, our new kitten is getting crazy. He's gonna need fixed ASAP, or our flat will not cope with him, and neither will the rabbit. We had let the rabbit out with him a couple of times but she doesn't like him trying to bite and kick her face. Now, though, he has started hunting things and makes the most weird, horrible growl when he thinks he's made a kill (even though it's never something living and today was a rapper from my christmas cake lol). I doubt they'll be out together again until he's fixed which is a shame cause rabby wants out a lot so he needs shut out in the hall.
Wednesday, 27 October 2010
Sunday, 17 October 2010
just a little one
Look how cute! This is Tumble, our 6 year anniversary present to each other...although, really James forked out the cash, I'm just taking care of everything else. Our anniversary is on halloween, so we're a bit early but nevermind. We're not sure if we have a boy or girl, but I'm taking him/her for the first jag on Wednesday, so there'll be a sex check happening too.
Not much else to say really...not totally sure what's going on health wise, headaches are terrible, skin has completely freaked out and it's driving me crazy - so itchy!
Anyway, just thought I'd post a cute little piccy to hopefully make you all smile...if there's anyone reading that is!
Wednesday, 29 September 2010
been a while...
but I've not had anything interesting to say.
I still don't, so don't expect anything amazing. Went up to the ward today cause I've been having the most terrible pains in the centre of my chest, radiating round into the back of my ribs and shoulders. My appetite has been more or less completely gone, I've been shattered but unable to get much in the way of sleep and my headaches have been shocking. I had to ask to get away from work early on Monday and spent all of Tuesday doing nothing. As usual, my chest didn't want to give up anything significant and I doubt much (if anything) will grow in it, which is frustrating the life out of me after what I managed to get up last week when I didn't have a bloody sample pot. I really do think the Drs must think I make shit up, but I don't, I genuinely feel crap.
Anyway, my weight's down 4kg and gastritis was the best we could really come up with, although it wasn't exactly a quick diagnosis...not like him really! I've been taken off cipro as it was about 4th on the list of side effects and have doubled up on omperazole to see if it helps. I managed to eat most of my dinner, but the pain afterwards was pretty intense again. I'm also on my 3rd week of fluconazole since starting colomycin/cipro, and have a week to go, which is driving me mad.
I just feel so frustrated tonight...really annoyed and irritable and just wanna be left alone. I know we all have bad days and everyone is entitled to them, I just can't be bothered with feeling like this.
Nevermind...no point even getting started, I could go on for hours.
I still don't, so don't expect anything amazing. Went up to the ward today cause I've been having the most terrible pains in the centre of my chest, radiating round into the back of my ribs and shoulders. My appetite has been more or less completely gone, I've been shattered but unable to get much in the way of sleep and my headaches have been shocking. I had to ask to get away from work early on Monday and spent all of Tuesday doing nothing. As usual, my chest didn't want to give up anything significant and I doubt much (if anything) will grow in it, which is frustrating the life out of me after what I managed to get up last week when I didn't have a bloody sample pot. I really do think the Drs must think I make shit up, but I don't, I genuinely feel crap.
Anyway, my weight's down 4kg and gastritis was the best we could really come up with, although it wasn't exactly a quick diagnosis...not like him really! I've been taken off cipro as it was about 4th on the list of side effects and have doubled up on omperazole to see if it helps. I managed to eat most of my dinner, but the pain afterwards was pretty intense again. I'm also on my 3rd week of fluconazole since starting colomycin/cipro, and have a week to go, which is driving me mad.
I just feel so frustrated tonight...really annoyed and irritable and just wanna be left alone. I know we all have bad days and everyone is entitled to them, I just can't be bothered with feeling like this.
Nevermind...no point even getting started, I could go on for hours.
Tuesday, 7 September 2010
...
Just a quick update!
I went to see the diabetes nurse, Christine, who is great. She wants me to monitor my sugars post meal 2 days a week (1 week day and 1 weekend day) for now and see how it goes. They were good for the couple of weeks before I went to see her but they are creeping back up so we'll see! Need to watch what I'm eating if I'm to stay away from insulin...I don't want it, but if it comes to it I know it's for the best. At least at the moment I can afford to watch what I eat, as my BMI is just over 24 so no need to worry there!
On Sunday I did my 10k. It was a great day for it, cloudy and breezy, and the atmosphere was unreal. There were lots of runners for the CF Trust, and I met Paul which was nice, although June Ross was keen to keep us apart lol. I was a shakey, breathless mess by the end and apparently lost my beetroot colour sharpish, turning a lovely shade of pale instead. I didn't realise at first that I was hungry and how much I was shaking until my mum told me and made me eat. Anyway, I think my uncle and I have raised almost £1000 between us which is great, and we are still collecting donations. The Stewarton and District Round Table have asked me to write an official letter asking for sponsorship so who knows what might come from that, and Alistair's work gave us £250 :)
I forgot, until I got a message last week, that I'd agreed to be musical director for a local pantomime again this year...that came as a bit of a shock as the auditions were on Sunday, so after all that running I had to go and listen to people try and sing. They weren't all terrible, but there were certainly very few people you could call singers...it's going to be interesting. I have no idea how many people I have in the chorus, and there are 14 principles, at least 10 of which have to sing! The performances are at the end of November, but I am unavailable for a lot of the rehearsals, which is going to make my job much harder. Tonight is the production meeting so fingers crossed it goes well.
I'm still applying for jobs...I've seen 1 in particular that I'd love to get, but I'm not going to talk about it incase nothing comes from it...that way I'll be less disappointed if I don't get it.
Hope everyone is keeping as well as possible :)
I went to see the diabetes nurse, Christine, who is great. She wants me to monitor my sugars post meal 2 days a week (1 week day and 1 weekend day) for now and see how it goes. They were good for the couple of weeks before I went to see her but they are creeping back up so we'll see! Need to watch what I'm eating if I'm to stay away from insulin...I don't want it, but if it comes to it I know it's for the best. At least at the moment I can afford to watch what I eat, as my BMI is just over 24 so no need to worry there!
On Sunday I did my 10k. It was a great day for it, cloudy and breezy, and the atmosphere was unreal. There were lots of runners for the CF Trust, and I met Paul which was nice, although June Ross was keen to keep us apart lol. I was a shakey, breathless mess by the end and apparently lost my beetroot colour sharpish, turning a lovely shade of pale instead. I didn't realise at first that I was hungry and how much I was shaking until my mum told me and made me eat. Anyway, I think my uncle and I have raised almost £1000 between us which is great, and we are still collecting donations. The Stewarton and District Round Table have asked me to write an official letter asking for sponsorship so who knows what might come from that, and Alistair's work gave us £250 :)
I forgot, until I got a message last week, that I'd agreed to be musical director for a local pantomime again this year...that came as a bit of a shock as the auditions were on Sunday, so after all that running I had to go and listen to people try and sing. They weren't all terrible, but there were certainly very few people you could call singers...it's going to be interesting. I have no idea how many people I have in the chorus, and there are 14 principles, at least 10 of which have to sing! The performances are at the end of November, but I am unavailable for a lot of the rehearsals, which is going to make my job much harder. Tonight is the production meeting so fingers crossed it goes well.
I'm still applying for jobs...I've seen 1 in particular that I'd love to get, but I'm not going to talk about it incase nothing comes from it...that way I'll be less disappointed if I don't get it.
Hope everyone is keeping as well as possible :)
Friday, 27 August 2010
back to band!!
I received a facebook message at the beginning of the week from my old trumpet teacher asking me to join a local wind band that he started last year...so I went. I hadn't touched my trumpet in 5 years and was a bit concerned about how my chest would react, but it was fine, my lips died long before my chest lol. I have to say though that I'm glad I had the IVs before hand though cause thinking about how I was I know it would've been a lot harder on me.
We are playing at both the National Concert Band Festival and the Scottish Concert Band Festival, in November and December, and big Friel (or Alan, as he shall be known from now on...we used to call him Friel instead...Alan Friel, you know how it goes...) has decided that we will play 2 completely different programmes...joy!!! My sister joined as well. She plays French Horn and just left school so isn't nearly as out of practise as me, but I think I did ok considering.
So far we have been given 5 pieces, including a medley of songs from Wicked! SWEET! There's not much point in mentioning any other pieces as I don't know them yet and I doubt anybody else does either lol...Schostakovitch and Eric Whitacre etc, nah. Although I will say that our only slow piece so far is an absolute stunner :)
That's me, done, had my ramble about band, feel like I'm 15 again. All I need now is a residential weekend and a competition and I'll be right back there! Although I'll miss out the vodka this time cause a trip to the headteachers office is not on the cards for me now...haha, good times! Not the getting caught part, but the part before that ;)
We are playing at both the National Concert Band Festival and the Scottish Concert Band Festival, in November and December, and big Friel (or Alan, as he shall be known from now on...we used to call him Friel instead...Alan Friel, you know how it goes...) has decided that we will play 2 completely different programmes...joy!!! My sister joined as well. She plays French Horn and just left school so isn't nearly as out of practise as me, but I think I did ok considering.
So far we have been given 5 pieces, including a medley of songs from Wicked! SWEET! There's not much point in mentioning any other pieces as I don't know them yet and I doubt anybody else does either lol...Schostakovitch and Eric Whitacre etc, nah. Although I will say that our only slow piece so far is an absolute stunner :)
That's me, done, had my ramble about band, feel like I'm 15 again. All I need now is a residential weekend and a competition and I'll be right back there! Although I'll miss out the vodka this time cause a trip to the headteachers office is not on the cards for me now...haha, good times! Not the getting caught part, but the part before that ;)
Wednesday, 25 August 2010
stuff
A very original title...I'm rubbish with titles.
James and I enjoyed our wee holiday :) He enjoyed it so much that he didn't want to leave. James in his element = chopping wood all day for the fire and going long, extremely taxing walks which left me knackered and wanting to cry lol. On the plus side, I felt a bit fitter when I got home than when I left. There's not really a lot to say about the holiday other than it was quiet, partly relaxing, partly knackering, pretty and different :) We spent a day on Bute which was nice and Rothesay is a pretty town. Fudge (the dog) really enjoyed herself too, she loved the walks! She was extremely well behaved and thought she was the queen for sleeping on the couch every night...sneeky. I don't have any pics at the moment as they're on my dads computer but when I get them I shall post a few.
I'm feeling now that I would really like a Monday - Friday job. Working til 10.15pm is not good for anybody, it's far too tiring, and then coming home and not sleeping properly just makes the next day workikng til 10.15pm even harder! I would've done anything to get home at 7pm last night lol. I'm also not keen on the fact that I'm working this whole weekend while James is off and 1 of my best friends, Leeanna, is going to South Korea for a year on Monday and I will only see her briefly on Saturday night as I'm working at 7.15am on Saturday and Sunday mornings! gutted. Normally I would sense a cancellation of a shift so that we could go out properly, but I have no money from being in hospital and if I cancel then I will have even less money next month! GAH!
My chest is feeling a lot better. I think, even though in terms of spirometry figures there wasn't much change, that the change in how my chest felt had been so gradual that I hardly noticed until the pain started. I find my left lung is still more productive than the right and it still looks pretty infected but who knows. That could just be the staph making it look that way. I suppose I'll find out when I'm next putting a sample in.
Hope everyone is keeping as well as can be :) x
James and I enjoyed our wee holiday :) He enjoyed it so much that he didn't want to leave. James in his element = chopping wood all day for the fire and going long, extremely taxing walks which left me knackered and wanting to cry lol. On the plus side, I felt a bit fitter when I got home than when I left. There's not really a lot to say about the holiday other than it was quiet, partly relaxing, partly knackering, pretty and different :) We spent a day on Bute which was nice and Rothesay is a pretty town. Fudge (the dog) really enjoyed herself too, she loved the walks! She was extremely well behaved and thought she was the queen for sleeping on the couch every night...sneeky. I don't have any pics at the moment as they're on my dads computer but when I get them I shall post a few.
I'm feeling now that I would really like a Monday - Friday job. Working til 10.15pm is not good for anybody, it's far too tiring, and then coming home and not sleeping properly just makes the next day workikng til 10.15pm even harder! I would've done anything to get home at 7pm last night lol. I'm also not keen on the fact that I'm working this whole weekend while James is off and 1 of my best friends, Leeanna, is going to South Korea for a year on Monday and I will only see her briefly on Saturday night as I'm working at 7.15am on Saturday and Sunday mornings! gutted. Normally I would sense a cancellation of a shift so that we could go out properly, but I have no money from being in hospital and if I cancel then I will have even less money next month! GAH!
My chest is feeling a lot better. I think, even though in terms of spirometry figures there wasn't much change, that the change in how my chest felt had been so gradual that I hardly noticed until the pain started. I find my left lung is still more productive than the right and it still looks pretty infected but who knows. That could just be the staph making it look that way. I suppose I'll find out when I'm next putting a sample in.
Hope everyone is keeping as well as can be :) x
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